I want to start this post by saying how lucky my family is when it comes to medical conditions and hospital stays, even though Faith has a critical congenital heart defect her hospital stays have been limited to surgeries and caths. Overall her health has been perfect and average, this past March (March 29th) she had an open heart surgery to replace the pulmonary valve that was put in when she was an infant. Though that surgery and hospital stay she was a rockstar! Only four days after open heart surgery she was discharged!! It is nothing short of amazing.
Now with her heart defect a sickness is always taken a little more serious, last week (12 days ago to be exact) she developed a fever, I brought her up to the pediatrician’s office, and they believed it was a viral infection that would clear up in a few days. Well a few days went by, and she was not improving so I called the cardiologist, he had the suspicion that she developed something called endocarditis which is an infection that traveled to her heart and attached to the new valve. This, of course, is very serious, so she was admitted to the hospital.
Well four days and multiple tests later they have dismissed endocarditis and any other major infection that stems from the surgery, and they think she has Lyme disease.
I am happy to have an answer finally, this time has been so hard on my family. My younger daughter is with my brother and his family and my husband is at work then comes to the hospital for a few hours then goes home to an empty house. Also, yesterday was my younger daughters birthday party which Faith and I could not attend.
Being in the hospital I have seen multiple kids run down a hallway saying “Mommy!!” because it is the first time they are seeing their mom for a few days, I have seen the pain in siblings eyes as they see their brother or sister with IV’s and attached to machines and they can’t understand whats going on. This is an emotion I saw in my daughter as she sat on Faith’s bed asking questions that no 7 year old should have to ask.
In the end, Faith has Lyme disease, she is now being treated and we are home and a complete family again. She will be on the antibiotic for 21 days but I know she will get better. This morning life is normal the girls are playing and fighting. This hospital stay was 5 days, it was hard but she is the strongest girl that I have ever met and she was a rock star.
Her mom, on the other hand, has a lot of healing to do…..